The Best Internet Programs/BESTINTERNET.bin/latest/cfs/cfs.txt

Text File | 1995-04-16 | 11.4 KB | 363 lines

<medicine/chronic-fatigue-syndrome/cfs-
[e-mail]>
<medicine/chronic-fatigue-syndrome/cfs-
[e-mail]>
those
 who are ill with CFS/CFIDS/M.E. (chronic fatigue syndrome).


Archive-name: medicine/chronic-fatigue-syndrome/cfs-guidelines


This discussion group on chronic fatigue syndrome is distributed both by
e-mail subscription as the CFS-L list, based at [e-mail],
and
notices.

 TOPICS:

Most messages can be appropriately posted to the basic 3 topics of
<none>, MEDical, or RESearch. The definitions of the designated
topics are as follows:

<no keyword>: This open category is appropriate for almost all postings
 except those dealing with medical issues, research,
social
 chatter, and other special topics as listed below. (When
 using Listserv commands, refer to this topic as OTHER.)

MEDical: medical care issues which are likely to have been discussed
before,
 i.e. treatment and diagnosis questions for individual cases,
for
 CFS or any related condition (warning: messages on this group
cannot
 serve as medical advice); how to find a doctor; how to handle
your
 doctor.

RESearch: scientific discussion and news items about the illness;
treatment
 and diagnosis issues which pertain to CFS patients as a class
(i.e.
 not individual cases); news items about new research,
 publications, conferences, media reports.

CHAT: humor, and social discussion about non-CFS issues.

ADMIN: for discussing issues about this group itself; the rules, how
they
 are applied, possible new topic categories.

FAQ: special notices for "frequently asked questions"; the formal
notices
 will be posted by the moderator only, but follow-up discussion
about
 them or how they may be improved may be posted here

Please see that your messages contain a designated topic keywords (see
greater participation from the e-mail side of this group. The keywords
must end with a colon with no intervening blank, e.g. ADMIN: . Multiple
keywords must not be separated by a blank, e.g. ADMIN,MED: .

E-mail subscribers can restrict received messages to only selected
topics
by sending a command in the form of SET CFS-L TOPICS topic1 topic2 etc.
as
an e-mail message to the address [e-mail]. By default, all
new subscribers receive all topics. To later add additional topics, you
can send a command in the form of SET CFS-L TOPICS +topic1 topic2. To
delete certain topics, send a command like SET CFS-L TOPICS -topic1
topic2 .
The open, "no keyword" topic may be refered to as OTHER. To see your
current
topics setting, send the command QUERY CFS-L. Digest and Index
subscribers
receive all messages regardless of topic.

An abbreviation unique to the topic keyword vis-a-vis the other keywords
may be used in place of the full keyword, and is encouraged. Please use
the abbreviations as shown.

 ------------------------------------------------------------------------
 CFS Group -- TOPICS Cheat Sheet
 (print out and keep near your keyboard)

<none> all except medical, research, chat and others shown below
MED: medical care, individual cases
RES: scientific discussion about the illness, CFS patients as a class

CHAT: humor, social talk
ADMIN: about the CFS group
FAQ: special notices on "frequently asked questions"

topic keywords always include a colon, never a blank

 ------------------------------------------------------------------------


 RULES:

1. On topic: Messages posted to this group must be limited to the topic
of
chronic fatigue syndrome.

2. No advertisements: Commercial advertisements are not allowed on this
group. This rule is in place in part because of group sentiment, but
also
because this group's messages are distributed through the assistance of
the
NIH Computing Center, a U.S. government agency, and allowing commercial
advertisements through the group would be an improper use of government
facilities. Participants may post reviews of consumer products or
services
in which they have no financial interest.

3. No flames.

 a. Accent the positive: When posting messages, please comment on
ideas
and make positive suggestions. Please do not personally criticize other
participants. Also, political discussions should be brief, and for the
most part should be conducted on the CFIDS-L group (see notice B below).

 b. Refer flames to the moderator: If you are personally criticized,
please do not respond directly on the group but instead bring the matter
to the attention of the list-owner privately (i.e., Roger Burns at
address
[e-mail]). If everyone responds directly to "flames",
then the other person may exercise their right to respond, and soon
we'll
have a spiraling melee. Please bring concerns to the moderator.

4. Proper subject and topic keywords: Post your messages to the
appropriate topic keyword, as described in the scheme listed above.
Also,
when replying to messages please don't automatically use the original
your message contains key ideas that are not captured by the default
Subject. Pay special attention to insert the proper topic keyword for
your reply and don't automatically use the keyword for the original
message you're replying to. This will make message-searching more
effective for all. The special topic keyword ALL: is reserved for use
by
the moderator only.

5. Short quotes: When replying to messages, please don't quote the
entire
original message, but only that part of the message you are commenting
on.
A little bit of cutting will save much reading time for the hundreds of
readers on this group.


 NOTICES:

A. Disclaimer: Any advice which may be given on this list regarding
diagnoses or treatments, etc., reflects ONLY the opinion of the
individual
posting the message. Those who have CFS are urged to consult with a
licensed health care practitioner who is familiar with the illness.

B. Posting privileges: This group is moderated. Those who would like
be
register
for direct posting privileges by doing the following: send the commands

 SUB CFS-L YourFirstName YourLastName
 SET CFS-L NOMAIL

as an Internet e-mail message to the address [e-mail].

C. Technical advice / message archives: For advice and information
about
this group and its message archives, and about other CFS groups and
resources on Internet/Usenet, read the CFS Internet help file. To
obtain
the file, send the command GET CFS NET-HELP as an e-mail message to the
Internet address [e-mail].

D. News sources: Readers of this group are advised to also follow the
CFS-NEWS electronic newsletter and the CFS Newswire service. These are
described in the CFS NET-HELP file mentioned in notice C above.

E. CFS info: General resources on CFS information are described in the
CFS-RES TXT file. To obtain it, send the command GET CFS-RES TXT file
to
the address [e-mail]. Other detailed files, some of which
contain the text of medical journal articles, are stored at the CFS-FILE
and CFS-D file bases, which are described in the Internet help file
mentioned in notice C above.

F. Other networks: For information about CFS discussion groups and
resources on other networks and on BBSs, read the "CFS/ME Electronic
Resources" guide. To obtain an electronic copy, send the command GET
CFS-NET TXT as an e-mail message to address [e-mail].

For further advice, contact the moderator, Roger Burns at address
[e-mail].














bedfellow.mit.edu
faqserv
<medicine/chronic-fatigue-syndrome/[e-mail]>
<medicine/chronic-fatigue-syndrome/[e-mail]>
 fatigue syndrome (CFS).


Archive-name: medicine/chronic-fatigue-syndrome/cfs-index
E-mail: send GET CFS INDEX to [e-mail]

 CFS Index to FAQs

This document describes the several FAQ files about chronic fatigue
syndrome and explains where to find them. These FAQs will be posted to
by ftp. Details about how to retrieve these documents as files are
described at the end of this document.

Some FAQs overlap in their coverage since some of them have been
developed
separately and independently. The CFS Resources FAQ will have much of
its
info repeated in the general CFS FAQ and in the Electronic Resources
FAQ.


 Catalog of CFS FAQs

------------------------------

ftp archive name: cfs-index
Listserv filename: CFS INDEX (at SJUVM and Albany)

 This file.

------------------------------

ftp archive name: cfs-faq
Listserv filename: CFS FAQ (at SJUVM and Albany)

 Answers to typical questions about chronic fatigue
 syndrome. There is a separate FAQ on CFS treatments.

------------------------------

ftp archive name: cfs-treatments
Listserv filename: CFS TREATMTS (at SJUVM and Albany)

 Treatments for chronic fatigue syndrome.

------------------------------

ftp archive name: cfs-guidelines
Listserv filename: CFS-L RULES (at NIH)

 Rules and technical info about the CFS discussion group, i.e. the

------------------------------

ftp archive name: cfs-network-help
Listserv filename: CFS NET-HELP (at SJUVM, NIH and Albany)

 Where to find discussion groups and info files about CFS available on
 Internet, Usenet and Listserv.

------------------------------

ftp archive name: cfs-resources
Listserv filename: CFS-RES TXT (at SJUVM, NIH and Albany)

 General resource file for CFS. Lists books, articles, national
 organizations, newsletters, and electronic discussion groups and
files.
 A large document (60K).

------------------------------

ftp archive name: cfs-electronic-resources
Listserv filename: CFS-NET TXT (at SJUVM)

 Lists all computer network resources for CFS on Internet, commercial
 services, and BBSs. Includes advice for those new to compter
networking.

------------------------------

ftp archive name: cfids-guidelines
Listserv filename: CFIDS-L WELCOME (at American)

 Procedures and rules for the CFS political action group, i.e. the

------------------------------

ftp archive name: cfs-hello
Listserv filename: CFS SURVEY (at Albany)

 Survey for the get-to-know-you "Hello" files for the participants of

------------------------------


lines as shown in the description above.

Via anonymous ftp these files can be found at rtfm.mit.edu in directory

The documents can also be obtained by e-mail from various Listservs. To
do so, create an e-mail message which contains the command the command
GET
followed by the two-part Listserv filename. Send to the Listserv
indicated in the description above. The various Listserv addresses are
shown below. For example, to get the CFS Network Help file, send the
command

 GET CFS NET-HELP

as an e-mail message to the address [e-mail] (or to
any of
the other Listserv that are also listed in that document's description
shown above).

Listserv addresses

NIH [e-mail]
SJUVM [e-mail]
Albany [e-mail]
American [e-mail]


------------------------------

For inquiries about these files, send e-mail to CFS-L-
[e-mail].
To participate in the development of the general and treatments FAQs,
mailing list at [e-mail] (which is the same group.)

-- Roger Burns [e-mail]