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- Newsgroups: sci.med
- Path: sparky!uunet!think.com!enterpoop.mit.edu!bloom-picayune.mit.edu!alcvax.pfc.mit.edu!mrl
- From: mrl@alcvax.pfc.mit.edu
- Subject: RE: cfs/fibromyalgia/accutane
- Message-ID: <23DEC92.16143099@alcvax.pfc.mit.edu>
- Sender: news@athena.mit.edu (News system)
- Nntp-Posting-Host: alcvax.pfc.mit.edu
- Organization: MIT PLASMA FUSION CENTER
- References: <1992Dec21.4274.28417@dosgate>
- Date: Wed, 23 Dec 1992 16:14:30 GMT
- Lines: 38
-
- In a previous article, "chris pinto" <chris.pinto@canrem.com> wrote:
- >
- >I restarted the accutane 3 weeks ago at a lower dose of 10mg(was taking
- >40mg before I stopped) and within 12 hrs was feeling slightly better,
- >and the 2nd day I felt much better. I now feel less sick, less pain,
- >but more fatigued. A good trade I think. I have constantly felt much
- >better the entire past 3 weeks on the accutane. I'm a lot less fatigued
- >now on the 10mg/day then I was on the 40mg/day. 40mg/80mg was necessary
- >better on 10mg of accutane then I felt on the 40mg 3 months ago.
- >
- >I really should visit a medical library and read up on this stuff. Have
- >you read up on accutane?
-
- If you read up on it like I did you would not want to stay on the stuff for
- long periods. The list of side effects is frightening, and what's more, so of
- them have been known to become permanent. The PDR says that it's unknown how
- it works.
-
- You mentioned in a prior post that before accutane you were on lots of Vitamin
- A. I forget, did you find any help from that?
-
- >>Hmm. Doubtful. It turns out that there isn't really any inflammation
- >>in fibromyalgia to speak of, it just feels that way.
- >
- >I think in my case it is inflammation. I take naproxen and toradol.
- >The naproxen distinctly takes away a feeling of what I think is
- >inflammation(and also helps fix a feeling of weakness). Were the
- >toradol alone doesn't touch that feeling nor the weakness, but does a
- >much better job on the pain. Which fits the fact that toradol has
- >little anti-inflammatory effect.
-
- Studies have shown that anti-inflammatories do little to help fibromyalgia
- patients. I've tried naproxen and others and find no change. I wonder if
- instead the accutane is affecting glands which control hormones? There are
- some who believe that fibromyalgia is hormone related.
-
- Mark London
- MRL@NERUS.PFC.MIT.EDU
-