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- From: Allison.Cozzi@f3216.n161.z1.fidonet.org (Allison Cozzi)
- Newsgroups: misc.handicap
- Subject: SCS
- Message-ID: <25763@handicap.news>
- Date: 18 Nov 92 21:31:38 GMT
- Sender: news@bunker.shel.isc-br.com
- Reply-To: Allison.Cozzi@f3216.n161.z1.fidonet.org
- Organization: FidoNet node 1:161/3216 - Computer Communicat, Concord Ca
- Lines: 51
- Approved: wtm@hnews.fidonet.org
- X-Fidonet: Spinal Injury Conference
- Originator: wtm@sheldev.shel.isc-br.com
-
- Index Number: 25763
-
- [This is from the Spinal Injury Conference]
-
- -> Aren't you glad I told you about this echo? [big grin]
-
- Sure am! It serves to get my fears down to their proper
- proportions.
-
- -> Seriously, though, I have two questions for you. First, where is you
- -> and how was it diagnosed.
-
- The RSD is in both legs. At first, when it was in just my left leg,
- there was a noticable appearance and temperature difference when
- compared to my other leg. The skin is a bit...shiny, I guess I should
- say...and hair doesn't grow on my legs as it used to (YAY! No more
- shaving...not that I could bend over that far to shave them *anyway*!).
- And, both legs (but more so on the left) feel like all the skin has been
- stripped off of them and to touch them with anything...clothing, water,
- sheets, hand...feels like claws are being dragged over an open wound.
- Mine was dignosed by the symptoms involved and we could see it travel a
- predictable course as it got worse. The first four years after my
- injury, it progressed rather slowly buyt when I was going through all
- those surgeries 1 1/2 yrs ago, it seemed to trigger it somehow and it
- progressed more in the ensuing six months than it had the prior four
- years.
-
- -> Secondly, when in the heck are they going to implant the rest of the
- -> SCS?
-
- Evaluation will be in early December. Then the surgeon has to beg a
- little with the insurance company. *THEN* the surgery. Transamerica had
- it all tied up for over a year and it didn't get straightened out until
- I told my attorney to file suit on my behalf again Transamerica for
- thwarting my medical care. Within two weeks, we had authorization for
- the first trip to Denver. This whole authorization business is for the
- birds. Seems like there is a better way to handle it...like someone who
- isn;t involved with the money part of it to be the go-between who has
- power to authorize procedures and surgeries or to deny them. These
- decisions should be made on a medical-only basis and not be handled by
- the guys with the checkbook! There's too much of a conflict of interest
- the way it is now. Doesn't that sound liek a better idea to you? ...to
- have a non-biased *MEDICAL* review board who has authorization power? I
- think that it being like that there couldn't be a lot of these
- shenanigans of legal filibustering, etc. and medical care couldn't be
- held up for reasons other than medical review.
- Allison
-
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